I was just thinking today, about this thing called Acromegaly, and how its effected my life. For example, Im 6 foot and 11 inches, and weigh 331lbs. My bones are twice the thickness and density than a normal human being, my heart and other organs are also bigger than normal, doctor says that if it were for the Acromegaly, i would be smaller. Now, if you look at the men in my family, I would probably be somewhere around 5 foot 8 inches. I would probably weight like 140 to 150lbs. Then all my life I would hear the questions, like, "how did you get so tall?" Then there 's the question," are your parents tall?" or,"your a Giant!" And there's many more.
I use to make up stories of fancy to entertain the curiosity of others, tell them I'm from another planet, the planet Luvtron! And because of turmoil on my planet, my mother put me into a capsol and sent me to earth. There I landed in the back yard of who is now my mother, who took me in and raise me as her own. That was my favorite story. And then there was the things that went with being a big kid, like, other kids parents not wanting me to play with there children for fear that I might hurt them. Then, if a group of kids and I got in trouble, I would get in more trouble than the rest. And the adult doing the scalding would utter the phrase,"your too big and should know better!" I learn humility at a early age, cause I was always reminded that, "just cause your big, don't mean anything." And was groomed to protect everyone around me, cause if someone got in trouble it was my fault, and if someone go hurt it was also my fault... All because of my size. Playing with other kids I was always "it" first cause I was the biggest, and when being served food and treats I was last because I was the biggest. So, I also learned patients.
Then when I began to play sports, my size became a blessing. Everyone one wanted me on their team. I knew I would get picked first, so I didn't try to stand out, like the rest of the kids. I was able to travel the country, and got an education form it. Made a lot of friends and connections. Later in life, it was found that I have Acromegaly, and that the reason for my stature which brought me all these things and made me into the person I am. But, also made me sick! And began to effect my body, lifestyle, and how I live my life in different ways. And now because I know what this condition has done to me, I cant help think about that when I hear those same questions. Like when people ask me"how did you get so big?" I say," I don't know, I'm lucky I guess," but in the back of my mind I'm thinking that I had a tumor in my head that caused my body to grow, and that how I got so big. Or, "your a giant!" well, technically I am a pituitary giant. But, can't say that either. I have to humble them along with myself
I admire my size, and think that it's a blessing from God, this condition is rare, so rare, that only 6 in 100,00 people have it. Or something like that. So, I feel that that makes me rare and special. I refuse to call it a disease, as the doctor do and I'm going to refer to it as a gift. A gift that will take sometime to adjust too, and figure out how to live with and remember the good it has brought me, and the things that have yet to come.
Peace
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